SIDE FEECTS!How little I knew. #ouch,#cancersucks,#breastcancer#sideeffects#toxicpiss
Crap, How little I knew about side effects! The doctors all spoke to me. I heard the names of my Chemo medicines. Chemo poisons describes them better. They do the job. They kill the cancer cells which wanted me dead.
I google searched the meds. I was going to be my own advocate! A cancer warrior!! All those bullshit trendy slogans . All those "You can do this,atta girls"" !Were right here with you. We got your back"!! Not to downgrade people supporting you , but you go through cancer treatment alone. I tried to learn some treatment lingo , from support .... I want to say groups... but its just post.
I think they might be called ' message boards". I would of preferred an old fashioned. chat room ,lol.
I have no memory for medical talks. I guess in the office, although , I know my doctor is saying very important things to me but my mind wanders.I think it was a bit of a denial thing in the beginning.
Or I forget half the things he or she said.
It is so not my doctors faults. They are excellent doctors they explained every thing to me... well almost everything to me. They answered my questions, but I didn't really know what to ask.
Let's start with chemo. I remember being shocked how man treatments there would be. Now I can not recall how many there were. I had an IV of taxol, combined with anti- nausea medicine plus another medicine that my oncologist mentioned was aggressive. The name of it escapes me that that med was "pushed " into my intravenous tube.
However my chemo nurses,called it the red devil . They used words like toxic. To give you and idea of just how toxic it was they told me to drink tons of water to flush it from my system. They told me to not allow anyone to share drinks with me, and to make sure I flushed the toilet twice and to make sure I cleaned the seat after each seat. Why? Because my bodily fluids would be toxic to family TOXIC to family members or anyone that used the toilet or shared a drink! Toxic??? What the hell..That I'm sure the doctors didn't mention. And who would know to ask "By the way doc, will my piss cause irritation to some one who sits on the seat after me, or will my vomit cause others skin irritation? "
Yes, and that isn't all .I had to sit in that hospital for 3-5 hours usually closer to 5,then the next day go to my blood oncologist for blood work and a shot!!"We don't want a low white blood count.". So the day after chemo I go for the shot , That will help my white cell count, great. But what I did not know the side effects from that shot were going to be worse that the red devil . (google cancer red devil treatment). NEULASTA ! I got terrible side effects from this , but I knew I needed it . It gave me bone and muscle pain and made me not just tired but exhausted.The pain lasted about 3-5 days and finished just before m next treatment. Not so much fun fighting cancer. What was their remedy for the pain ... pain meds ,nope, anti- histamine I do not recall the exact name I used but it was a very common one. I am currently done with both chemo and radiation but the side effects linger on. I hear they should lessen, they should get better. They may or may not go away, we will see in time.
I have that was from neuropathy m the chemo. It can be very painful I have it in both feet. I am now on Letrozole and it also has side effects as all medicines do, one of which is neuropathy, and this drug I have to take 5-10 years to keep the cancer from coming back.
I am not looking for sympathy or pity or even pep talks really. I just want to put my journey out there so maybe someone might venture across that's going through this now . Maybe so you could be somewhat more informed or learn to ask more questions. Or even what questions to ask.
Next time I will write about radiation and those side effects, That I wasn't prepared for. I am a fighter. I will get by day by day.
I google searched the meds. I was going to be my own advocate! A cancer warrior!! All those bullshit trendy slogans . All those "You can do this,atta girls"" !Were right here with you. We got your back"!! Not to downgrade people supporting you , but you go through cancer treatment alone. I tried to learn some treatment lingo , from support .... I want to say groups... but its just post.
I think they might be called ' message boards". I would of preferred an old fashioned. chat room ,lol.
I have no memory for medical talks. I guess in the office, although , I know my doctor is saying very important things to me but my mind wanders.I think it was a bit of a denial thing in the beginning.
Or I forget half the things he or she said.
It is so not my doctors faults. They are excellent doctors they explained every thing to me... well almost everything to me. They answered my questions, but I didn't really know what to ask.
Let's start with chemo. I remember being shocked how man treatments there would be. Now I can not recall how many there were. I had an IV of taxol, combined with anti- nausea medicine plus another medicine that my oncologist mentioned was aggressive. The name of it escapes me that that med was "pushed " into my intravenous tube.
However my chemo nurses,called it the red devil . They used words like toxic. To give you and idea of just how toxic it was they told me to drink tons of water to flush it from my system. They told me to not allow anyone to share drinks with me, and to make sure I flushed the toilet twice and to make sure I cleaned the seat after each seat. Why? Because my bodily fluids would be toxic to family TOXIC to family members or anyone that used the toilet or shared a drink! Toxic??? What the hell..That I'm sure the doctors didn't mention. And who would know to ask "By the way doc, will my piss cause irritation to some one who sits on the seat after me, or will my vomit cause others skin irritation? "
Yes, and that isn't all .I had to sit in that hospital for 3-5 hours usually closer to 5,then the next day go to my blood oncologist for blood work and a shot!!"We don't want a low white blood count.". So the day after chemo I go for the shot , That will help my white cell count, great. But what I did not know the side effects from that shot were going to be worse that the red devil . (google cancer red devil treatment). NEULASTA ! I got terrible side effects from this , but I knew I needed it . It gave me bone and muscle pain and made me not just tired but exhausted.The pain lasted about 3-5 days and finished just before m next treatment. Not so much fun fighting cancer. What was their remedy for the pain ... pain meds ,nope, anti- histamine I do not recall the exact name I used but it was a very common one. I am currently done with both chemo and radiation but the side effects linger on. I hear they should lessen, they should get better. They may or may not go away, we will see in time.
I have that was from neuropathy m the chemo. It can be very painful I have it in both feet. I am now on Letrozole and it also has side effects as all medicines do, one of which is neuropathy, and this drug I have to take 5-10 years to keep the cancer from coming back.
I am not looking for sympathy or pity or even pep talks really. I just want to put my journey out there so maybe someone might venture across that's going through this now . Maybe so you could be somewhat more informed or learn to ask more questions. Or even what questions to ask.
Next time I will write about radiation and those side effects, That I wasn't prepared for. I am a fighter. I will get by day by day.
Comments
Post a Comment